Family Support in Self-Management at Home: a Descriptive Study among Children with Cancer
Abstract
Background: Cancer is still a significant health problem today. In 2020, an estimated 19.3 million new cancer cases and nearly 10 million cancer deaths occurred worldwide. Cancer patients and their families need support to manage them effectively, emotionally and lifestyle. This study aims to see a picture of family support for clients with cancer.
Methods: This research uses a quantititatif researce Home in Padang City, in mid-August 2024. The sample for this study was 26 who filled out the questionnaire, describing the characteristics of the respondents.
Results: The most significant data with the highest category value can be seen in the first statement which represents the indicator of emotional support. The instrument used "My family encouraged me when I was afraid about the long-term treatment process I was undergoing" namely with a category value of 2.95 (1.139) and a lowest value was in Instrumental support, namely providing vehicles and direct support at 2.01 (1,155).
Conclusion: From the research it can be concluded that indicators of family support must always be improved and strengthen social networks between families of cancer sufferers with social observers and seek support from local NGOs according to family reach.
Keywords
References
Acuna, S. A., Huang, J. W., Scott, A. L., Micic, S., Daly, C., Brezden-Masley, C., Kim, S. J., & Baxter, N. N. (2017). Cancer Screening Recommendations for Solid Organ Transplant Recipients: A Systematic Review of Clinical Practice Guidelines. American Journal of Transplantation, 17(1), 103–114. https://doi.org/10.1111/ajt.13978
Cai, T., Huang, Q., & Yuan, C. (2021a). Emotional, informational and instrumental support needs in patients with breast cancer who have undergone surgery: A cross-sectional study. BMJ Open, 11(8), 1–7. https://doi.org/10.1136/bmjopen-2020-048515
Cai, T., Huang, Q., & Yuan, C. (2021b). Profiles of instrumental, emotional, and informational support in Chinese breast cancer patients undergoing chemotherapy: a latent class analysis. BMC Women’s Health, 21(1), 1–10. https://doi.org/10.1186/s12905-021-01307-3
Caterino, J. M., Adler, D., Durham, D. D., Yeung, S. C. J., Hudson, M. F., Bastani, A., Bernstein, S. L., Baugh, C. W., Coyne, C. J., Grudzen, C. R., Henning, D. J., Klotz, A., Madsen, T. E., Pallin, D. J., Reyes-Gibby, C. C., Rico, J. F., Ryan, R. J., Shapiro, N. I., Swor, R., … Lyman, G. H. (2019). Analysis of Diagnoses, Symptoms, Medications, and Admissions Among Patients With Cancer Presenting to Emergency Departments. JAMA Network Open, 2(3), e190979. https://doi.org/10.1001/jamanetworkopen.2019.0979
Deegan, A., Brennan, C., Gallagher, P., Lambert, V., & Dunne, S. (2023). Social support and childhood cancer survivors: A systematic review (2006–2022). Psycho-Oncology, 32(6), 819–833. https://doi.org/10.1002/pon.6128
Dionne-Odom, J. N., Azuero, A., Taylor, R. A., Wells, R. D., Hendricks, B. A., Bechthold, A. C., Reed, R. D., Harrell, E. R., Dosse, C. K., Engler, S., McKie, P., Ejem, D., Bakitas, M. A., & Rosenberg, A. R. (2021). Resilience, preparedness, and distress among family caregivers of patients with advanced cancer. Supportive Care in Cancer, 29(11), 6913–6920. https://doi.org/10.1007/s00520-021-06265-y
Ferlay, J., Steliarova-Foucher, E., Lortet-Tieulent, J., Rosso, S., Coebergh, J. W. W., Comber, H., Forman, D., & Bray, F. (2013). Cancer incidence and mortality patterns in Europe: Estimates for 40 countries in 2012. European Journal of Cancer, 49(6), 1374–1403. https://doi.org/10.1016/j.ejca.2012.12.027
Fridriksdóttir, N., Sævarsdóttir, P., Halfdánardóttir, S. Í., Jónsdóttir, A., Magnúsdóttir, H., Ólafsdóttir, K. L., Gudmundsdóttir, G., & Gunnarsdóttir, S. (2011). Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression. Acta Oncologica, 50(2), 252–258. https://doi.org/10.3109/0284186X.2010.529821
Giachello, A. L., Watson, K. S., Stuart, M., Ba, H. B., Glenn, J., Wang, S., Navas-Nacher, E., Nava, M., McKoy, J., de la Riva, E., Cooper, J., Aponte-Soto, L., Kanoon, J., Martinez, E., & Simon, M. (2019). Community–academic partnerships to reduce cancer inequities: The chicagoCHEC community engagement core. Progress in Community Health Partnerships: Research, Education, and Action, 13(Special Issue 2019), 21–37. https://doi.org/10.1353/cpr.2019.0032
Guo, J. W., Reblin, M., Tay, D. L., Ellington, L., Beck, A. C., & Cloyes, K. G. (2021). Patterns of stress and support in social support networks of in-home hospice cancer family caregivers. Journal of Social and Personal Relationships, 38(11), 3121–3141. https://doi.org/10.1177/02654075211024743
Illian, D. N., Hafiz, I., Meila, O., Utomo, A. R. H., Nuryawan, A., Siregar, G. A., & Basyuni, M. (2021). Current status, distribution, and future directions of natural products against colorectal cancer in indonesia: A systematic review. Molecules, 26(16), 1–18. https://doi.org/10.3390/molecules26164984
Kanner, A., & Stup, Rogger, shopie tailibert. (2017). Effect of Tumor-Treating Fields Plus Maintenance Temozolomide vs Maintenance Temozolomide Alone on Survival in Patients With Glioblastoma A Randomized Clinical Trial.
Kolsteren, E. E. M., Deuning-Smit, E., Chu, A. K., van der Hoeven, Y. C. W., Prins, J. B., van der Graaf, W. T. A., van Herpen, C. M. L., van Oort, I. M., Lebel, S., Thewes, B., Kwakkenbos, L., & Custers, J. A. E. (2022). Psychosocial Aspects of Living Long Term with Advanced Cancer and Ongoing Systemic Treatment: A Scoping Review. Cancers, 14(16), 1–19. https://doi.org/10.3390/cancers14163889
Lu, S., Zhang, W., Wu, L., Wang, W., Zhang, P., Fang, W., Xing, W., Chen, Q., Yang, L., Mei, J., Tan, L., Sun, X., Xu, S., Hu, X., Yu, G., Yu, D., Yang, N., Chen, Y., Shan, J., … Yao, S. (2024). Perioperative Toripalimab Plus Chemotherapy for Patients with Resectable Non-Small Cell Lung Cancer: The Neotorch Randomized Clinical Trial. Jama, 331(3), 201–211. https://doi.org/10.1001/jama.2023.24735
Meunier, J., Libert, Y., Delvaux, N., Marchal, S., Etienne, A., Lienard, A., Reynaert, C., & Razavi, D. (2007). Psychobiological correlates of communication skills use and learning: Preliminary results. Psycho-Oncology : Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 16(9), S25–S25. https://doi.org/10.1002/pon
Rosa, Y., Siswandi, A., Anggraeni, S., Setiawati, O. R., Studi, P., Fakultas, K., & Universitas, K. (2022). Hubungan dukungan keluarga terhadap kualitas hidup pada penderita kanker payudara yang sedang menjalani kemoterapi di rs abdul moeloek bandar lampung. Jurnal Kesehatan Tambusai, 3, 280–290.
Shadi, D., Jabraeili, M., Hassankhani, H., Alhani, F., & Bostanabad, M. A. (2024). Development and validation of a supportive programme for family caregivers of children suffering from cystic fibrosis: Protocol for a sequential exploratory mixed-methods study. BMJ Open, 14(6). https://doi.org/10.1136/bmjopen-2023-081560
Suwignjo, P., Bsi, U., Irawan, E., Bsi, U., Anggraeni, M., Bsi, U., Pratiwi, A. N., & Bsi, U. (2019). Hubungan Dukungan Sosial Dengan Kualitas Hidup Pasien Kanker : Systematic Review. Jurnal Keperawatan, 7(2), 142–152.
World Health Organisation. (2017). Screenshot (46). In World Health Organisation (WHO). https://www.who.int/en/news-room/fact-sheets/detail/violence-against-women
Yoon, S. M., Shaikh, T., & Hallman, M. (2017). Therapeutic management options for stage III non-small cell lung cancer. World Journal of Clinical Oncology, 8(1), 1–20. https://doi.org/10.5306/wjco.v8.i1.1
DOI: http://dx.doi.org/10.32883/rnj.v8i1.3409
DOI (PDF): http://dx.doi.org/10.32883/rnj.v8i1.3409.g1268
DOI (PDF): http://dx.doi.org/10.32883/rnj.v8i1.3409.g1270
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